Tag: understanding

~ Sephira ~ Leave a comment

thefrogman:

tyleroakley:

ideal life

This robot is for a very sick little boy who suffers from eosinophilic esophagitis and anaphylactic shock syndrome. His obesity is a symptom and unrelated to why he must send a robot to school. 

If there are even tiny particles of milk or peanuts in the air, he will end up in the emergency room. He is basically allergic to life and has been in intensive care twice in the last 2 years. This robot allows him to go to school. He can learn, interact with students and teachers, and make friends that aren’t nurses and doctors. 

Sometimes when I tell people I have to work from bed most days, they respond with, “I wish I could do that.” or “That sounds awesome.”

I know this is an easy and obvious joke to make, and I am not admonishing anyone who has made that kind of joke. But I would like people to know that it is hurtful. One of the more hurtful things that is said to me, if I’m being honest. Because I want nothing more than to get out of this bed. And I think this kid would like to play with his friends in real life rather than sending his robot to school. Our lives are not ideal, but we adapt them to make the best out of a bad situation. 

~ Sephira ~ Leave a comment

livingaschristian:

Today my boyfriend asked me what dysphoria looked like to me. I honestly didn’t know how to answer it, because I try to suppress it, so I’m not very good at listening to myself, and I’m not good with words. I forget things, I lie or change subject.

I don’t experience my dysphoria, it just sometimes peaks it’s ugly head up and tell me my body is horrible and something to be ashamed of. And I keep pushing myself to not let it affect me, ‘cause I don’t want to feel it.

Drawing this makes me dysphoric. It forces me to think about my situation, about my body and my future.

I should probably think about it some more. It’s not healthy not to feel your feelings, I think.

And about the surgeries.. I want top-surgery, but I can’t afford it right now. I fear bottom surgery because it can’t give me what I want, so for me, it wouldn’t be worth it, and that upsets me.