staff:

myhusbandstumor:

It’s over.

It wasn’t a war or a fight. Those things have rules. This was more like Aaron getting in the ring with the Mohammed Ali of cancers, and smiling for round after round after he got his teeth knocked out and his face rearranged.

Ding.

(keep reading…)

One more heartbreak, today. 

Nora’s been documenting Aaron’s tumor for two and a half years now. Beautifully, openly, sometimes lightly, always poignantly. As she puts it, “It’s not a cancer story, it’s a love story. With some cancer.” You can start that story from the beginning over here

Aaron passed away yesterday. Our condolences to all those he leaves behind. We’re in awe of your strength, and we’re grateful for this record of your love.  

ptsdbuffy:

this is a really important message because it is a common misconception about autism, but it’s also important to acknowledge that people who have conditions that involve less of the other types of empathy are also important and are no less human because often times people try to dehumanize us (autistic people) by saying we don’t have empathy, and it is important to correct their misconception, but it is also important to assert that people who don’t have other kinds of empathy are just as important and valuable as those who do.

10 Things to Stop Doing If Your Loved One Is an Alcoholic

1. Blaming Yourself

It’s typical for alcoholics to try to blame their drinking on circumstances or others around them, including those who are closest to them. It’s not unusual to hear an alcoholic say, “The only reason I drink is because you…” Don’t buy into it. If your loved one is truly an alcoholic, they are going to drink no matter what you do or say. It’s not your fault. They have become dependent on alcohol, and nothing is going to get between them and their drug of choice.

2. Taking It Personally

When alcoholics promise they will never drink again, but a short time later are back to drinking as much as always, it is easy for family members to take the broken promises and lies personally. You may tend to think, “If they really love me, they wouldn’t lie to me.” But if they have become truly addicted to alcohol, their brain chemistry may have changed to the point that they are completely surprised by some of the choices they make. They may not be in control of their own decision making.

3. Trying to Control It

Many family members of alcoholics naturally try everything they can think of to get their loved one to stop drinking. Unfortunately, this usually results in leaving the alcoholic’s family members feeling lonely and frustrated. You may tell yourself that surely there is something that you can do, but the reality is not even alcoholics can control their drinking, try as they may.

4. Trying to Cure It

Make no mistake about it, alcoholism, or alcohol dependence, is a primary, chronic and progressive disease that sometimes can be fatal. You are not a healthcare professional. You are not a trained substance-abuse counselor. You just happen to love someone who is probably going to need professional treatment to get healthy again. That’s the alcoholic’s responsibility, not yours. You can’t cure a disease.

5. Covering It Up

There is a joke in recovery circles about an alcoholic in denial who screams, “I don’t have a problem, so don’t tell anyone!” Alcoholics typically do not want anyone to know the level of their alcohol consumption because if someone found out the full extent of the problem, they might try to help! If family members try to “help” the alcoholic by covering up for their drinking and making excuses for them, they are playing right into the alcoholic’s denial game. Dealing with the problem openly and honestly is the best approach.

6. Accepting Unacceptable Behavior

It usually begins with some small incident that family members brush off with, “They just had too much to drink.” But the next time, the behavior may get a little bit worse and then even worse. You slowly begin to accept more and more unacceptable behavior. Before you realize it, you can find yourself in a full-blown abusive relationship. Abuse is never acceptable. You do not have to accept unacceptable behavior in your life. You do have choices.

7. Having Unreasonable Expectations

One problem in dealing with an alcoholic is that what might seem like a reasonable expectation in some circumstances, might be totally unreasonable with an addict. When alcoholics swear to you and to themselves that they will never touch another drop, you might naturally expect that they are sincere and they won’t drink again. But with alcoholics, that expectation turns out to be unreasonable. Is it reasonable to expect someone to be honest with you when they are incapable of even being honest with himself or herself?

8. Living in the Past

The key to dealing with alcoholism in the family is staying focused on the situation as it exists right now, today. Alcoholism is a progressive disease. It doesn’t reach a certain level and remain there for very long; it continues to get worse until the alcoholic seeks help. You can’t allow the disappointments and mistakes of the past affect your choices today, because circumstances have probably changed.

9. Enabling

Often, well-meaning loved ones, in trying to “help,” will actually do something that enables alcoholics to continue along their destructive paths. Find out what enabling is and make sure that you are not doing anything that bolsters the alcoholic’s denial or prevents them from facing the natural consequences of their actions. Many an alcoholic has finally reached out for help when they realized their enabling system was no longer in place.

10. Putting Off Getting Help

After years of covering up for the alcoholic and not talking about “the problem” outside the family, it may seem daunting to reach out for help from a support group such as Al-Anon Family Groups. But millions have found solutions that lead to serenity inside those meetings. Going to an Al-Anon meeting is one of those things that once you do it, you say, “I should have done this years ago!”

Look After Yourself

There may be very little you can do to help the alcoholic until he or she is ready to get help, but you can stop letting someone’s drinking problem dominate your thoughts and your life. It’s okay to make choices that are good for your physical and mental health.

10 Things to Stop Doing If Your Loved One Is an Alcoholic

Flaredown – Decode Your Chronic Illness

spookyautisticcombeferre:

empyreansea:

spookyjealous:

HOLY FUCK SPOONIES LOOK AT THIS
29 DAYS LEFT LETS FUND THIS!

Flaredown is a web site and mobile app that lets your track your chronic illness and figure out triggers so you can reduce your flares before they ever begin.

It’s a spoonie-centric approach to figuring out what works. You can track your illness, and bring your data into your doctor. You can talk with other spoonies who have your condition and see what works for them. You can talk about drugs and see if the side effects are worth the benefits of medication.

it’s banding together in spite of illnesses that seek to isolate us.

it’s bringing light to symptoms that are not understood by doctors.

literally amazing

if you are not chronically ill/disabled and can spare the cash PLEASE fund this there literally are no symptom trackers out there (that I have found) that cater to people with chronic illness other than maybe crohn’s and there especially aren’t ones designed to connect the chronically ill and that is so important there is so much that even a great doctor can’t understand and the more you can connect to people with similar symptoms the better. I’m specifically addressing this to healthy people because those of us who need this most rarely have money to spare between treatments that may or may not help, testing and retesting, often being unable to work, lawyers fees for trying to get disability, special dietary needs (esp if those needs are considered a fad diet and the price gets jacked up and yes I am looking at you gluten-free stuff), assistive technology, transportation due to inability to drive, the list goes on but I’m going to stop here.

this app is so important and it is desperately needed bc seriously have you ever tried setting up a custom spreadsheet for this stuff it is hard as fuck and there aren’t templates for it and spreadsheets are less than ideal no matter how you set them up

Flaredown – Decode Your Chronic Illness

Saying “you don’t have anything to be depressed about, your life is great” is like saying “what do you mean have asthma, there is loads of air in here.”

something my 13 year old nephew said to my mum after she claimed I had no reason to be suffering from depression, I repeat, he is THIRTEEN. (via rdjobsessions)

Wiiiiicked. Much love. 

(via asapscience)