depression is as real as a broken leg

thecapitolgypsy:

“it’s an excuse to lay in bed all day." 

"just get over it.”

“think about something else.”

you wouldn’t say any of these things to someone with cancer, cystic fibrosis, or a broken limb. so why do you think it’s okay to say it to someone who’s depressed?

let me tell you something: depression is the result of a chemical imbalance in the brain. just as cancer is a result of cell mutation, cystic fibrosis is the result of a gene mutation, and a broken limb is the result of trauma. ailments, diseases, pains—they have causes. mental illness is not an “excuse” to get out of going to the gym or finishing your homework. 

just as a broken leg will incapacitate your leg, depression will incapacitate your mind. a broken leg and depression alike can prevent you from completing normal, daily activities. 

with all of this in mind, i will argue depression is worse than a broken leg. a broken leg will heal in the span of a few weeks or months. depression can take years. a broken leg may have you on pain medication for a few hours; depression may have you on medication for the rest of your life. 

will a broken leg prevent you from being happy? maybe at first. depression, on the other hand, makes it nearly chemically impossible for you to achieve true happiness. 

i’m sick and tired of the bullshit stigmas surrounding mental illness. just because it’s not something you can always see with your eyes does not make it less real than a broken leg. just because it’s something you don’t understand does not give you the right to hurt other people with your ignorance and accuse someone of laziness and incompetence, when in reality, you are lazy and incompetent for not taking the time to think through what you’re saying or to research a disease you claim to not understand. 

i don’t want to hear it anymore. there is not a single fucking excuse for treating someone like shit because you don’t understand what they’re going through. life is hard enough without people being assholes to each other all the time. 

anyway. do not tell me depression is not as real as a broken leg when there have been days when no amount of pleading or crying could get the boy i love most out of bed. do not tell me depression is not as real as a broken leg when the boy i love most spends more time thinking about killing himself than he does enjoying his young, beautiful life. and don’t you dare tell me depression is not as real as a broken leg when people, every single day, choose to end their lives because they can’t see the light at the end of the tunnel.

i am so fucking sick of people treating each other like shit because of ignorance. we’re in this life together and we have an obligation to be kind to one another. you have the power to make someone smile; don’t you dare use that power to hurt people. 

deadly-voo:

littlemissantisocialite:

thelamedame:

nezumiko:

spoonie-rin:

smurfettude:

thelamedame:

Mankoski Pain Scale
Mankoski devised this pain scale to help describe the subjective
experience of pain in more concrete terms to her doctors and family. Please
feel free to use it and distribute it with attribution.

0 – Pain Free

1 – Very minor annoyance – occasional minor twinges.
No medication needed.

2 – Minor Annoyance – occasional strong twinges.
No medication needed.

3 – Annoying enough to be distracting.
Mild painkillers take care of it. (Aspirin, Ibuprofen.)

4 – Can be ignored if you are really involved in your work, but still
distracting.
Mild painkillers remove pain for 3-4 hours.

5 – Can’t be ignored for more than 30 minutes.
Mild painkillers ameliorate pain for 3-4 hours.

6 – Can’t be ignored for any length of time, but you can still go to work and
participate in social activities.
Stronger painkillers (Codeine, narcotics) reduce pain for 3-4 hours.

7 – Makes it difficult to concentrate, interferes with sleep. You can still
function with effort. Stronger painkillers are only partially effective.

8 – Physical activity severely limited. You can read and converse with
effort. Nausea and dizziness set in as factors of pain.
Stronger painkillers are minimally effective. Strongest painkillers reduce
pain for 3-4 hours.

9 – Unable to speak. Crying out or moaning uncontrollably – near delirium.
Strongest painkillers are only partially effective

10 – Unconscious. Pain makes you pass out.
Strongest painkillers are only partially effective.
————————————————————————————————————
Copyright © 1995, 1996 , . Right to copy with attribution
freely granted. The information contained herein written and copyright by
andi@… ( Mankoski)
==========================

I’m an 8 most days. Today it’s a heavy 8.

I find there’s too big of a jump from 7-8. It goes from still functional to completely disabled in one number.

I live at an 8, occasionally a 7.5 on a better day, and an 8.5 on days where I freak out my husband so much he threatens to take me to the ER. Occasionally I even reach 9.

Also, people with chronic pain/chronic illness will experience pain differently from someone who is healthy and only occasionally suffers from some sort of low-number acute pain. For example, I have been living at an 8 for two years straight, and then before that a solid 7 for two years, and before that I was in pain too, but it was more manageable (between a 4-6). So, I’ve lived with some level of chronic pain for most of my life and have become accustomed to it, whereas if someone who hardly ever experiences higher-number pain were to suddenly feel what I feel on one of my worst days, they would find it much more jarring and might even number it higher than I did. Similarly, if I’m only experiencing pain at a 6, I’ll ignore it, because my pain level is normally higher than that, but if a healthy person were at a 6 they would already consider themselves to be in a substantial amount of pain.

I also have many different types of pain in my body caused by different things, and they are not all synchronized at the same pain level all the time. I always think of my pains as having auditory volume. Sometimes one pain is loud (let’s estimate an 8) while a different pain I’m experiencing simultaneously is quieter (let’s say a 5). So in my opinion you should always have to specify a pain level for over all pain and then numbers for each individual offender.

I created this pain scale. Back in 1994, when I was using the name Mankoski and living as a female, I wrote this painscale and published it on an early internet-based endometriosis support community. Since then it’s taken on a life of its own. It’s been published countless places both online and in print, been used in academic pain studies and burn units, been refined and shared and branched out to so many places that a web search for “Mankoski” gets my pain scale as the first several hits.

In the twenty years since I wrote it, I’ve made drastic changes in my life, not the least of which is ditching that name and that gender. I still have endometriosis, mostly dormant now thanks to testosterone. And I still have chronic pain.

If I had it to do over, there are changes I’d make to this pain scale. I agree with the comments above that it’s not fine-grained enough between 7 and 8. And I wish I’d called it the McCallum Pain Scale, instead of using my ex-spouse’s name. But I’m still incredibly proud of it. I’m glad it’s something that can help people. And I’m glad that out of my own experience of living with chronic pain and disability, something good has come.

Thank you. I’ve found this immensely helpful, and discussed this a bunch (prolly how you found me) and im kinda honored to play a part in keeping it alive

Kindof a bummer it’s got your old name attached, but i’d be happy to rewrite/edit my posts to include a more accurate attribution.

For me, a usual day is about a 6, and a good day is a three. I do get days below that, but they are rare. Bad days are mostly 7-8, with the occasional 9 where I hope that I can pass out due to the exhaustion of being in that much pain.

This sort of pain scale is valuable because so many of them give you no idea of what level means what. A doctor will say “10 is the worst pain you can imagine” and in comparison people scale things down. So what might have been an 8 gets called a 6 because people have different capacities for imagining pain, I guess. Idk, I had a lot of trouble with it when I had appendicitis.

Now with fibro, I record my pain levels daily. I use this scale to help me work out where I’m at; it’s been very helpful. Again like the above scale it’s not for everyone but it helps me because otherwise I’d have no idea. Most good days for me are a 2, bad days usually a 4 or a 5. I’m lucky. I do get spikes up near a 7 or 8 in particular body parts at particular times, but it rarely lasts more than a couple of hours so I don’t log the entire day at that level.

What’s been interesting for me as my fibro’s been getting worse over the last couple of years is that you really do get used to the pain and what may have been a 3 becomes a 2. So important that healthcare providers understand that when it comes to chronic pain.

ieatbigtitss:

superwholockalypse:

dreamingofdoctorwho:

colorsofsocialjustice:

colorsofsocialjustice:

contra-indication:

spondylitis:

The nerve!….This goes out to all the spoonies.

Read this:

My name is Emelie Crecco, I’m 20 years old and I have cystic fibrosis. CF affects the lungs (as of many organs in the body) because of this I have a handicapped sticker. I’m not one to “abuse” the sticker, meaning I use it when I’m having a “bad day” (some days its a little harder to breathe). Today was HOT so I needed to use my sticker. I was running errands all day around my town, I pulled into a handicapped spot, placed the sticker in my mirror and continued into the store. Upon returning to my car I found a note written by someone, it said “Shame on you, you are NOT handicapped. You have taken a space that could have been used by an actually handicapped person. You are a selfish young lady.” I was LIVID. How can someone be so ignorant and cowardly? They clearly saw me walk out of my car, why not approach me? Not all handicaps are visible. I would love for you to share this story. It would help spread awareness for CF, but it would help open people’s minds to what handicapped really is.
Thank you for your time”
~Emelie Crecco

A friend of mine fell over 20 feet and basically broke half his ribs, punctured his lung, broke his arm in three places that required many surgeries to fix and messed up a nerve in his leg. He had to walk with a cane for a long time after it and some lady in a restaurant thought he was just walking with a cane for the hell of it and she ripped it from his hands and grabbed his messed up arm and shook him and told him he was an awful human being for pretending to be handicapped. What the fuck people?

This is what real ableism looks like.

I have ulcerative colitis, an autoimmune disorder which causes my body to attack my colon, and I qualify for one of those stickers. I’m scared to get one, though, because I look healthy and whole.
-Orange

A mutual friend of mine’s mother has severe fibromyalgia (that gives her a handicapped pass) and as she was walking to her car after buying her groceries, a man actually lunged at her and started yelling at her about her “not looking handicapped”. It left her mother shaking and crying, of course, and it just makes me so angry how awful and ignorant some people can be. 

Not all handicaps are visible

Can I just pin this sentence on every lamppost all over the planet please

Fucking assholes

Depressed person: “I just couldn’t do it.”

Non-depressed person: “Why not?”

Depressed person: “You know how you have a ‘survival instinct’ – that vague internal force that just stops you from knowingly hurting yourself?”

Non-depressed person: “Yeah.”

Depressed person: “It’s like I have that, only it’s all wonky. When I want to do something that’s good for myself, or that I need to do, it just stops me.”

Me, trying to describe what it’s like to have depression, and why I can’t just do the things I need to do sometimes.  (via archers-bones)

So accurate it hurts

(via kiriamaya)

Never let anyone tell you that you are not worth being loved if you don’t love yourself. Never let anyone tell you that your mental illness is the reason why you are not in a relationship. Never let anyone tell you that you should smile more, fix your hair, or wear more color. Never let anyone make you feel bad about what you can’t always control.

What It’s Like To Be In Love When You Have Depression By: Holly Everett (source)