livingwithdisability:

spoonie-living:

radically-disabled:

spoonie-living:

I have a really exciting Spoonie Living announcement for y’all! When I started on my 6-month medical leave from work, one of my goals was to create a zine for new spoonies, to help them hit the ground running as they begin their chronic illness experience. I’m calling it Chronically Badass, and it’s finally done!

Here’s what I cover inside:

  • Spoon theory
  • Getting answers
  • Working with doctors
  • Work & school
  • Friends & family
  • Reactions
  • Mental health
  • Coping strategies
  • Online communities
  • Mobility

It’s free for download right here (although you’re welcome to donate if you like), so be sure to check it out!

Please also reblog and spread the word so others can find and benefit from this zine.

Is there any way to get this without a credit card? I’d love to read it, but not sure how to get it without having a card.

Gosh, absolutely! If you set the amount to $0, the credit card thing will disappear—give it a shot 🙂

Just read this and loved it!

princessblogonoke:

Anxiety & Helping Someone Cope. 
I didn’t want to make it overwhelming or too long remember, so I kept it to the main points that benefit me greatly when I’m experiencing an attack.
40 million of Americans alone suffer with anxiety; it’s a horrid feeling when you know someone just wants to help you but you cannot even construct a simple sentence at the time, so please share this in hope that it benefits even just 1 person. Muchos love. 

Don’t Call Robin Williams’ Death a Waste

sonneillonv:

When people describe a suicide as a ‘waste’ IDK it pushes buttons inside me.  When I was younger, and when I was so depressed I was considering suicide, my primary reason was feeling like I was already a waste – a waste on peoples’ time, a waste on their resources, a waste of their affection.  I’d been convinced that I was completely selfish, that I took and took without giving back, and that I only caused misery to others by being alive because I was so thoughtless.  I was convinced that, after a brief mourning period, their lives would be better if I wasn’t around to ruin them anymore.

Now I’m an adult and I understand that when a thirteen-year-old feels that way, it’s because the adults in their life have failed them.  Kids, as we say in the SPN fandom, are supposed to eat your food and break your heart.  A teenager being self-absorbed is developmentally normal, especially when that teenager is being relentlessly bullied, is friendless, is struggling with school, and otherwise has plenty of misery going on in their own lives that prevents them from being terribly interested in other peoples’.  I stopped being suicidal when someone told me it was okay to care about myself first.  I had literally never heard that before.  I thought I had to justify my own existence.  I thought if I wasn’t satisfying other people, if I wasn’t making other people happy, then I didn’t deserve to live.

When people talk about ‘waste’, what are we wasting?  Are we wasting their time by forcing them to grieve?  Are we wasting their resources by demanding their attention?  ”You’re wasting the rest of your lives”.  Okay, fine, but they’re OUR lives.  They aren’t yours.  You aren’t entitled to them.  You don’t get to obligate us to continue in misery because our deaths would affect YOU.  People who say suicide is selfish, or a pointless waste, make me furious because they want us to just continue living on in abject misery, the kind of misery that makes us literally want to die… why?  Because they’re entitled to us?  Because we owe it to them?  Because their discomfort is worth more than our agony?

I don’t support suicide.  I don’t want anyone to commit suicide.  But I understand why.  And I understand that half the time, the people who claim people who kill themselves are wasting their lives, or being selfish, don’t actually have any interest in fixing the real problems, because that’s too much work; it costs too much; it requires too much time and too much care.  If you actually cared about helping people who are in agony, you wouldn’t call them selfish for wanting to escape it, and you wouldn’t call that escape a ‘waste’.  You’d call it a tragedy, because whatever could have been done to make life bearable HERE was not done.  A solution was not found.  The pain was not eased.  And only one escape was left.

I’m still depressed, but I’m better now.  I haven’t been in a suicidal state for more than ten years.  I was able to change my circumstances enough that the people who had instilled those toxic beliefs in me no longer had control over me, and I had a daemon at my side reminding me that it is okay, that it is healthy, to care about my own self-interest.  Now my husband is in the hospital because, like Robin, he is bipolar.  He’s been depressed, without a manic swing, for three months, and it’s only getting worse.  He’s hurting himself, and he’s looking for a way out.  But he has a way out that isn’t killing himself – there is a good hospital close to us where he knows the doctors and feels comfortable, where they will listen to him and adjust his medication.  He has a wife and a son who understand his illness, who support him and NEVER blame him, and who will gladly take on the challenge of handling his affairs in his absence because we are his team, and we are on his side.

Despite all this, I honestly believe I’ll lose him one day.  It gets worse, it doesn’t get better.  The progression of his condition has been so severe over the course of six years that I’m scared to contemplate where we’ll be in ten.  And I’m resigned to that.  I accept it.  I love him for the time he’s here, and I want to ease as much of his pain as it’s in my power to do.  I’m furious that I’m so impotent and I can’t do more because when you love someone you don’t want them to suffer.

Robin Williams was in pain.  Now he isn’t anymore.  I’m grieved for the suffering he endured, and for his family and friends who are suffering now.  Losing a battle like this is terrible and tragic and heartbreaking.  We all wish we could have done better by him.  And if you want others to avoid following his example, we need to do better by them.  We have to ease the pain HERE.  We have to make good care accessible to them HERE.  We have to fight stigma and support members of our community HERE.  It may not always end up being enough, because most of the time it gets worse, not better.  But we should do it because people are suffering, and they need help, and they don’t have to earn the right to their own existence.  They don’t owe us their suffering.  We owe them relief.

Don’t Call Robin Williams’ Death a Waste

erebusodora:

msgryz:

the-cellist-in-portland:

Did you know: Chris Evans gets panic attacks. Yes, he does. This is one reason why he’s very private and didn’t really do any meet-and-greets on the Avengers’ sets.

It amazes and inspired me that a man who does what he does can do it, even with an anxiety disorder. You go, Chris.

This is why I get so upset when I hear negative comments about Chris and how he doesn’t seem as out-going as the rest of the Avengers cast. I remember hearing people complain about how he’s ‘rude’ and the like and it’s sad, because I highly doubt he intends to come off that way, he’s just more reserved than the others.

I remember hearing once that he actually went to seek psychiatric help before accepting the role of Captain America because of how anxious he felt regarding it. As well as the fact that he already played another Marvel superhero and he was concerned how comic fans would react to his playing another hero in that universe.

Just because someone’s in the entertainment industry doesn’t mean they’re going to be incredibly outgoing off camera just as much as they appear to be on camera. Some people just really enjoy acting; they’re not the characters they portray nor are they like their costars nor are they going to be incredibly outgoing because of their choice of career.

Now I’m really starting to root for this guy. Because, well. I kind of get the point more accurately than I wish I did.

thoughtsreadunspoken:

The number of high profile deaths recently relating back to addiction and mental health issues is absolutely devastating; those struggling should be met with kindness and understanding, not stigma and hate.

For anyone out there battling demons such as these, know that you are not alone and you deserve to be helped and to be loved.  

Helping those with autism find employment

Helping those with autism find employment