Tag: master post

hyperelasticzebra:

Hi friends, it’s Ali! I moved accounts yet again, so have reposted my spoonie masterpost. Hopefully this one will spread like wildfire like the original (: Love and spoons ❤ xx

WHAT IS A SPOONIE?

A spoonie is a person, living with one or more physical or mental chronic illness or disability, that identifies with Christine Miserandino’s Spoon Theory.

• Visual Explanation (Abridged)
• FAQ
• Another Visual

SPOONIE FOUNDATION WEBSITES

• Ehlers-Danlos National Foundation
• Fibromyalgia & CFS/ME Resources

SPOONIE ILLNESS INFO

• 10 Things to Understand About Illnesses
• Chronic Pain Infographic
• Crohn’s Disease Infographic
• Functional Ability Scale
• Get to Know Endometriosis Infographic
• Living w/ a Chronic Illness – From the Outside Looking In
• Lupus Facts & Statistics
• Mobility Devices – When Is It Time to Upgrade?
• Mobility Devices – You Don’t Need Permission!
• Myalgic Encephalomyelitis Facts & Symptoms
• Spoonie Awareness Ribbon Colours
• Think You Might Have Ehlers-Danlos Syndrome?
• What It’s Really Like to Be Chronically Ill
• What Is Systemic Lupus Erythematosus (SLE)?

SPOONIE TIPS, HELP, & ADVICE

• A Brief Guide to Recovering From Surgery (or a flare, treatment, procedure, etc)
• Chronic Illness and Busy Schedules
• Coping Skills for Disabled and Chronically Ill Persons
• Costochondritis and Slipping Rib Syndrome Tips
• Ehlers-Danlos Syndrome Advice
• Ehlers-Danlos Syndrome Tips
• Getting a Diagnosis / Doctor’s Appointments 101
• Ice vs. Heat — What to Use When
• Holiday Spoonie Reminders
• Mankoski Pain Scale
• Nutrition and Crohn’s Disease
• POTS and Mitral Valve Prolapse Tips
• Resources for Vascular EDS
• Self-Care Ideas, Tips, and Resources
• Self Care When You Don’t Have the Spoons for Showering
• Spoonie Tips (by i-am-lost-in-the-tide)
• Spoonie Tips (by thefaultinourpoons)
• Tips for Traveling with a Chronic Illness
• TMJ Dysfunction Tips
• Yellow Dot Program

SYMPTOMS LISTS OF CHRONIC ILLNESSES

• Fibromyalgia Monster List of Possible Symptoms
• Lyme Disease Symptoms List
• Mega List of Ehlers-Danlos Symptoms
• The ME/CFS Symptoms List

SPOONIE REMEDIES & TREATMENTS

• Do It Yourself Heating Pads Quick & Easy!
• Non-Drug Treatments for Pain
• Non-Pharma Pain Management
• OTC Pain Medicine Chart
• Periodic Table of Vitamins
• Stretches That Help Your Digestion
• Treating Lupus
• Wheelchair Masterpost

SPOONIE SCHOOL-RELATED

• 504 Plan (Pre-University Accommodations)
• Chronic Illness in University
• Chronic Illness in University: Studying/Revising
• University Financial Aid / Scholarships for Disabilities

SPOONIE MISCONCEPTIONS

• “I have a chronic illness, therefore I am disabled.” not always true!
• “I’m all alone.” false! see below.

INTERACTING WITH SPOONIES

• 13 Reasons Why “But You Don’t Look Sick” Is Not a Compliment
• Please Do Not Dismiss Me
• Please Do Not Question My Activities
• Open Letters to Those Without Ehlers Danlos
• Stop Telling Me What I Need to Eat to Cure My Incurable Illness
• Things Not to Say to a Spoonie Infographic
• Things to Say to a Spoonie
• Things Able-Bodied People Need to Stop Saying

SPOONIE STRUGGLES

• 5(+) Biggest Struggles of a Spoonie

SPOONIE CLICHÉS

• Clichés Often Heard in the Spoonie World
• Spoonie Problems

SPOONIE MEMES

• Chronic Illness Cat
• Chronic Illness Memes
• Ehlers-Danlos Memes
• You Might Have EDS If…

SPOONIE VIDEOS

• I Am The 96%
• Spoonie How To Videos
  • Education, Part 1
  • Education, Part 2
  • Education, Part 3
• Spoon Theory v. Shot In The Knee v. Gorilla In Your House

SPOONIE PETITIONS

none for the moment…

THINGS TO DO ON A LOW SPOON DAY

• Low-Spoon Recipes
• Puppies! For Happiness!

SPOONIE DISABILITY

• Disabled Beauties
• How to Help Disabled People w/o Spending a Penny
• Making Ends Meet When You’re Disabled
• Voting While Disabled – Know Your Rights Infographic
• What Disabled Persons Mean / What Able Bodied Persons Think

SERVICE DOG RELATED

• ADA Service Dog Laws
• How to Get a Service Dog in 4 Steps
• Key Things to Know About Service Dogs
• Service Dog Companies
• Service Dog Education
• Service Dog Fraud – Quest for the Vest

AVOID ABLEISM

• Ableist Language and How to Avoid It
• Avoid Everyday Ableism
• Avoiding Ableist & Sexist Language Won’t Make Us Less Fun
• Do Not Call Someone Out For Using an Assistive Device
• Do Not Shame Disabled People
• Don’t Use Ableist Language
• Friendly Reminder – Disabled People are People
• List of Disability Terms w/ Negative Connotations
• PSA – Do Not Dehumanize Disabled People
• Reasons to Give Up Ableist Language
• Young Does Not Equal Able-Bodied

SPOONIE ITEMS

• Amazing Weighted Blankets for an amazing price!
• AmoeBAND
• Awesome Shower Chair
• Back Rx by Nada Chair (helps w/ sitting up straight & back pain)
• Electrolyte Replenisher Gluten-Free & Vegan
• Good Rx App
• Medical Alert IDs
• Mobility Aids & Decorations
• Spoonie Magazine – The Pillow Fort
• The Spoon Meter
  • How to Use
  • Code for ½ Spoons by hyperelasticzebra

INTERACT WITH FELLOW SPOONIES

• Lupus Support
• Spoonie Chatroom
• Spoonie Chatroom (by i-am-lost-in-the-tide)
• Spoonie Map

MISCELLANEOUS

• Extra Burdens Faced by Young People w/ Chronic Illness
• Walking a Little is Not “Able to Walk”

AWESOME SAUCE SPOONIES ♥

• Spoonies of Tumblr Masterpost

CREDITS & OTHER INFORMATION

Last updated 25^th May 2015 @ 17:10 EST
Updated when possible (updated version here ♥)
Please reblog / like only — do not edit. Thank you.
Message hyperelasticzebra to add a blog, article, or post to the list.

I try my best to find as many spoonie blogs and posts to add to this as possible, but if I have missed you, your blog, or a helpful post, please let me know! I don’t always have the spoons or time to search for articles pertaining to specific illnesses.

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