Devotional blog dedicated to the Goddess Sigyn offering support to those who are "holding the bowl" within difficult relationships.
The irony to me about that situation that we all chronically live in is the harder you try to protect the people around you from being uncomfortable with the fact that you are sick, the more invisible it becomes.
Carolyn Hax, 10 Feb 2010:
Dear Carolyn: One of my friends has had fibromyalgia for the past year. It makes me sad, and so I like to find alternative treatments and cures and tell her about them. She’s gotten really annoyed with me for doing this, but I am only trying to…
honestly students with mental disorders such as depression anxiety etc that go to school should get more recognition and support, most people have no idea of what it is to have to pick yourself up every morning and attend class even when you feel like dying
I am so proud of each & every one of you that this post applies to. You are so much stronger, more inspirational, and more resilient than you realize or give yourselves credit for
SHOUT OUT TO EVERYONE WHO STILL TRIES TO GET BACK INTO THE SWING OF THINGS AFTER DEPRESSION HIT THEM HARD. THERE ISN’T ENOUGH RECOGNITION FOR THOSE PEOPLE WHO KNOW THAT THEY’RE GOING TO LOSE INTEREST AND MOTIVATION AGAIN BUT PUSH THEMSELVES TO DO STUFF ANYWAYS. YOU ARE FIGHTING A DAILY BATTLE WITH YOUR OWN THOUGHTS AND YOU’RE STILL COMING OUT ON TOP, YOU’RE ALL BRAVE AS FUCK
A simple, beautiful way to track your chronic illness.HOLY FUCK SPOONIES LOOK AT THIS
29 DAYS LEFT LETS FUND THIS!Flaredown is a web site and mobile app that lets your track your chronic illness and figure out triggers so you can reduce your flares before they ever begin.
It’s a spoonie-centric approach to figuring out what works. You can track your illness, and bring your data into your doctor. You can talk with other spoonies who have your condition and see what works for them. You can talk about drugs and see if the side effects are worth the benefits of medication.
it’s banding together in spite of illnesses that seek to isolate us.
it’s bringing light to symptoms that are not understood by doctors.
literally amazing
if you are not chronically ill/disabled and can spare the cash PLEASE fund this there literally are no symptom trackers out there (that I have found) that cater to people with chronic illness other than maybe crohn’s and there especially aren’t ones designed to connect the chronically ill and that is so important there is so much that even a great doctor can’t understand and the more you can connect to people with similar symptoms the better. I’m specifically addressing this to healthy people because those of us who need this most rarely have money to spare between treatments that may or may not help, testing and retesting, often being unable to work, lawyers fees for trying to get disability, special dietary needs (esp if those needs are considered a fad diet and the price gets jacked up and yes I am looking at you gluten-free stuff), assistive technology, transportation due to inability to drive, the list goes on but I’m going to stop here.
this app is so important and it is desperately needed bc seriously have you ever tried setting up a custom spreadsheet for this stuff it is hard as fuck and there aren’t templates for it and spreadsheets are less than ideal no matter how you set them up
A medical crisis or lifelong health condition rewrites the script of your relationship. Your roles may change drastically. Your future doesn’t look the way you’d hoped. Sex, money, work, chores, fun — they’re all different now. “Managing the way an illness affects your marriage is just as important as keeping up with medications and doctor’s appointments and treatments,” Dr. Sotile says.
“Today, most illnesses aren’t short events. They’re processes that go on and on and on, possibly for the rest of your lives. And both of you will need different things at different times in the process. Couples who take responsibility for this can build stronger, closer marriages despite the presence of illness.”
How to Survive a Health Crisis or Chronic Illness in Marriage | Reader’s Digest
When should you disclose medical conditions to a date? When is illness too much for a relationship to survive?
One major issue chronically ill people face in dating is disclosure. The question of when to share the illness with a prospective partner fills online forums, videos, articles, blogs, conferences, and discussions. Sharing too soon may scare the person off and sharing too late may lead to a lack of trust.
HI.
I’m Ender, and this is my tattoo. I’ve had chronic pain since I was around twelve years old. Two years ago, I was diagnosed with Fibromyalgia. Three weeks ago, my Mother told me she has the gene for Ehlers-Danlos Syndrome, that my Grandmother did, and that I likely do as well. She was right. Two weeks ago, I was diagnosed with EDS.
Every step of the way, the chronic pain and invisible illness community has been there for me. It’s remarkable. I’ve never turned towards a group of complete strangers who have responded to me with nothing but love, understanding, and open arms. When I’m having a bad day, literally all it takes is a moment to reach out, to connect, and to feel the support of this community to know I’m going to be okay.
I got this tattoo from Teresa Sharpe on the TV show “Best Ink”. She touched my heart with her own understanding, and the fact that she truly wanted to give me an amazing tattoo for being strong enough to go on the show is plain to see when looking at her work. I’ll never forget the experience.
Keep your spoons close, friends. And know that even when you feel you’re down to your last, you’ve got a spare tucked away in your sleeve somewhere.
Rock on.
It’s here. Chronic Illness and Education
Part 1 is all about going to school when you have a chronic illness. Thank you so much to Ali for putting this together. I hope you find this helpful, and th…It’s that time of year, everyone is dreading going back to school, especially when having a chronic illness can make everything ten times harder.
Check out all three videos:
Chronic Illness and Education Part 1 – School
Chronic Illness and Education Part 2 – Home Schooling
Chronic Illness and Education Part 3 – University
Also check out these links for posts about School and University
My wonderful Spoonie little pseudo-sister, thefaultinourspoons, put together this great post for out school bound Spoonies — please give it a look! It’s fantastic, as usual!! 💙
Holding the Bowl 