waiting (for the world to end)

poetryforplebs:

She empties the bowl, and he writhes beneath her. He stopped screaming centuries ago.

Doesn’t mean she forgets the sound.
When she stands back up, arms shaking under the weight of the ever-present bowl, his eyes meet hers.

“Wife,” he rasps, smile curling even now (and others would think that he was mocking, but she knew better). “You are good to me,” he murmurs, and makes a move to reach out to her. The bindings clink (though they shouldn’t, realistically) and he falls back. The dashed expression is there and gone in an instant. 

Sigyn doesn’t make a sound. He can still smile, still tease even now. She can’t feel her face, frozen as it has been at his agony for too long. 

“What do you want?” he tries to purr, but pants instead. “How can I repay you?”

She opens her mouth, ignoring the steady plink plink plink above her. 

She meets his eyes and–

He is apologizing. 

She almost wants to laugh. 

He, the god of tricks and mischief and never regretting a thing. Apologizing. 

And to who? 

The daughter of her father, the friend turned enemy? 

No, Sigyn decides, shivering under the burden. That is not Sigyn’s role. 

She is his wife. 

The bowl is so heavy. He may have stopped screaming, but she can feel her own screams filling her lungs until her bones crackle like the ice and snow. And yet still–

She holds.

(She can’t stop. She won’t ever stop.)

Sigyn twists her head and smiles back at him. It feels wrong. But it will have to do. 

“Lie to me,” she commands him. 

Her husband smiles, because he understands. 

And then Loki opens his mouth and does what he promises.

hyperelasticzebra:

Hi friends, it’s Ali! I moved accounts yet again, so have reposted my spoonie masterpost. Hopefully this one will spread like wildfire like the original (: Love and spoons ❤ xx

WHAT IS A SPOONIE?

A spoonie is a person, living with one or more physical or mental chronic illness or disability, that identifies with Christine Miserandino’s Spoon Theory.

SPOONIE FOUNDATION WEBSITES
SPOONIE ILLNESS INFO
SPOONIE TIPS, HELP, & ADVICE
SYMPTOMS LISTS OF CHRONIC ILLNESSES
SPOONIE REMEDIES & TREATMENTS
SPOONIE SCHOOL-RELATED
SPOONIE MISCONCEPTIONS
  • “I have a chronic illness, therefore I am disabled.” not always true!
  • “I’m all alone.” false! see below.
INTERACTING WITH SPOONIES
SPOONIE STRUGGLES
SPOONIE CLICHÉS
SPOONIE MEMES
SPOONIE VIDEOS
SPOONIE PETITIONS

none for the moment…

THINGS TO DO ON A LOW SPOON DAY
SPOONIE DISABILITY
SERVICE DOG RELATED
AVOID ABLEISM
SPOONIE ITEMS
INTERACT WITH FELLOW SPOONIES
MISCELLANEOUS
AWESOME SAUCE SPOONIES ♥
CREDITS & OTHER INFORMATION

Last updated 25th May 2015 @ 17:10 EST
Updated when possible (updated version here ♥)
Please reblog / like only — do not edit. Thank you.
Message hyperelasticzebra to add a blog, article, or post to the list.

I try my best to find as many spoonie blogs and posts to add to this as possible, but if I have missed you, your blog, or a helpful post, please let me know! I don’t always have the spoons or time to search for articles pertaining to specific illnesses.


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bogganbeliefs:

I love the work that the Wycked Griffin does. The shop artisan made these two devotional runic rings for me for Sigyn and Loki. Not only are they gorgeous but inexpensive as she offers them in aluminum, copper, silver and bronze.

I couldn’t be happier and they make a beautiful pair.

Shop can be found on Etsy here: http://etsy.me/2DOLhld

Maven – health & wellness designed for women.

sephiraallen:

Free healthcare for International Women’s Day (March 8, 2018)

Every day, millions of women are held back because they lack access to quality healthcare. Well, not today.

We’re celebrating International Women’s Day by waiving fees on all women’s health appointments on Maven. Video chat with OB-GYNs, pediatricians, therapists, nutritionists, and more—at no cost, from wherever you are.

Maven – health & wellness designed for women.

seashells-and-bookshelves:

candidlyautistic:

teaboot:

This may just be my experience as an autistic person, but the kids I’ve nannied whose parent’s complain of ‘bad awful in cooperative selfish autistic behavior’ are… Not like that? At all?

Like, for example, I cared for a kid for a while who was nonverbal and didn’t like being touched. Around six years old? Their parent said that they were fussy and had a strict schedule, and that they had problems getting them to eat. Their last few nannies had quit out of frustration.

So, I showed up. And for the first little while, it was awkward. The kid didn’t know me, I didn’t know them, you know how it is. And for the first… Day and a half, maybe? I fucked up a few times.

I changed their diaper and they screamed at me. I put the TV off and they threw things. Not fun, but regular upset kid stuff.

Next time, I figured, hell, I wouldn’t like being manhandled and ordered around either. Who likes being physically lifted out of whatever it is they’re doing and having their pants yanked off? Fucking few, that’s who.

Next time, I go, ‘hey, kiddo. You need a new diaper?’ and check. ‘I’m gonna go grab a new one and get you clean, okay?’ ‘Wanna find a spot to lay down?’ ‘Alright, almost done. Awesome job, thanks buddy’.

I learned stuff about them. They liked a heads up before I did anything disruptive. They didn’t mind that I rattled of about nothing all day. They didn’t like grass or plastic touching their back. They were okay with carpets and towels. They liked pictionary, and the color yellow, and fish crackers, and painting. They didn’t look me in the face (which was never an issue- I hate that too, it fucking sucks) but I never had reason to believe that they were ignoring me.

Once I learned what I was doing wrong, everything was fine. Did they magically “”“become normal”“” and start talking and laughing and hugging? No, but we had fun and had a good time and found a compromise between what I was comfortable with and what they were comfortable with. (For the record, I didn’t magically sailor-moon transform into a socially adept individual, either. In case anyone was wondering.)

I don’t like eye contact. It’s distracting and painful and stresses me out.

They didn’t like eye contact either.

Is eye contact necessary to communication? No. So we just didn’t do it.

Was there ever a situation where I HAD to force them to drop everything and lay down on the lawn? No. So the thirty second warning came into play, and nobody died.

“But they never talked!”

No, they didn’t. And they didn’t know ASL, and they didn’t like being touched.

So you know what happened?

My third day in, they tugged on my shirt. ‘Hey monkey, what’s up?’ I asked. And they tugged me towards the kitchen. ‘oh, cool. You hungry?’. They raised their hands in an ‘up’ gesture. ‘you want up? Cool.’ and I lifted them up. They pointed to the fridge. I opened it. They grabbed a juice box out of the top shelf, and pushed the door closed again. ‘oh sweet, grape is the best. You are an individual of refined taste.’ I put them down and they went back to their room to play Legos.

“But they didn’t say please or thank you!” “But you should be teaching them communication skills!” “But!” Lalalalala.

1. The entire interaction was entirely considerate and polite. I was never made uncomfortable. I was made aware of the problem so that I could help them solve it. There was no mess, no tears, no bruises, no shouting.

2. Did my brain collapse into a thousand million fragments of shattered diamond dust out of sheer incomprehension? No? Then their communication skills were fine. Goal realized, solution found, objective complete. They found the most simple and painless way to communicate the situation and then did it.

Kids are not stupid. AUTISTIC kids are not stupid.

I’m willing to bet real cash money that the real reason the last few nannies had quit had a million times more to do with their own ability to cope, not the kid’s.

To this day, that was the most relaxed and enjoyable job I’ve ever had.

And I know I don’t speak for everyone. All kids are different. All adults are different. But in my time and experience, pretty much 95% of all my difficulties with children come from ME not being understanding enough. Every single “problem child” I’ve worked with turned out to be a pretty cool person once I started figuring out how to put my ego aside and let them set the pace.

Again, not speaking universally, here. I’m just saying. Sometimes social rules are bullshit, you know? People are people

Have you ever read an article about the study that found that teaching the parents to cope with autistic kids yields better results than other therapies? Because this is exactly what they were talking about.

It’s all about adjusting to the needs of the kid you got, and not wrapping the kid around your needs, wants, and expectations. 

gryphyl:

piplup-commander:

I feel like the line between “fluffy uwu self care” and “get your shit together self care” is thinner than people seem to think. Like, sitting in a quiet space with a book and maybe some twinkly fairy lights gives me the spoons to go call my damn doctor like I’ve been meaning to. Bath bombs or shower steamers make me feel content and/or sparkly, which gives me confidence to go out in public. (Plus, I bathed.) I dye my hair funky colors so if I feel like people are staring at me I can say it’s at that instead of whatever my anxiety wants it to be. 

The two are not mutually exclusive, is what I’m getting at, and I never see that mentioned, just either “self care is being nice to yourself” or “self care is kicking yourself in the ass to function for a few hours”. Kick yourself in the ass with niceness.

Gotta get your emotion-focused coping before you do your problem-focused coping.

Vigils To Honor People With Disabilities Killed By Caregivers

autisticadvocacy:

“Fifty communities from San Francisco to Washington, DC, and as far as Canada and Australia will convene this Thursday to hold vigils of their own and memorialize people with disabilities who’ve been murdered by their caregivers.”

Vigils To Honor People With Disabilities Killed By Caregivers