Fuzzy #zebraprint #kneelengthsocks with #pink trim ❤ ❤ ❤
The Ehlers-Danlos Syndromes is often symbolized by zebra stripes. In the early days of modern medical training, the school of thought was if you hear hoof beats, expect horses…not Zebras. Since then, this archaic philosophy harmed many of us living with EDS.
We persevere against great adversity to find a diagnosis holding the answers for lifetimes of pain and dysfunction. Still, we face countless dismissals from less educated practitioners. The Ehlers-Danlos Syndromes, particularly Hypermobility EDS, is intensely more common than once thought. Turns out, the Zebra analogy of the early days of formalized medicine is obsolete!
Even so, my Zebra peeps stake no less in our beloved mascot. The analogy shifts towards the unique characteristics to each, individual Zebra’s stripes. No two Zebra share the same stripe pattern and the same applies to those with any of the Ehlers-Danlos Syndromes. Each of us presents differently, making care management challenging to even the most seasoned practitioner.
Some of us walk, run and work…
Some of us used to…
Some of us will again…
And still, some of us never experience independent functions…There are too many factors in calculating how different people respond to life with a chronic, progressively disabling conditions but the constant remains: Awareness improves outcomes!
Ten years ago, even with multiple pains, life threatening lab values, and distressing symptoms my doctors could never say what was causing my multisystemic dysfunction. Now, I finally know why but meet with disability because the damage can’t be undone.
This is why I can’t stop talking about EDS! I want others like my former self to know there are answers and hope for better quality of life with diagnosis. It shouldn’t be so hard but the #EDSSociety is taking great strides to ensure the awareness documentation is readily accessible for doctors who want to learn and doctors ignorant to the reality of this complex process. Finally, it’s a start & #ItsOurTime ❤
#EDSawareness #ZebraStrong #vascularehlersdanlossyndrome #pots #chronicillness #wheelchairuser #filas #knobbyknees
Holding the Bowl 