Since joining up with the Chronic Illness Bloggers Network ran by Julie Ryan of Counting My Spoons, I can’t tell others experiencing illness enough about the benefits of being a chronic illness blogger. In less than a year, my membership connected me with a number of brands offering premium products to help manage the woes of my Chronic Illness Life with Ehlers-Danlos Syndrome. Not only that but my website stats steadily increase each month ticking by since joining. I connect with a number of Chronic Illness Bloggers via the network and enjoy working with Julie on campaigns as she is always ready and willing to help as needed. it is an absolutely phenomenal experience!
Chronic Illness Blogger SUPER MASSIVE Holiday Giveaway | OnlyinthisHead.com | Chronic Illness Life with Ehlers-Danlos Syndrome | [Image Description: Photo of a rectangular present wrapped in red paper with accents of golden and green leaves. There is a yellow bow on the top of the box. The background is white. The article and blog title overlay the article. Noted are four stars with text written over: 1. Runs 11.21.2016 to 12.03.2016 – 2. Free to Enter – 3. 11 Different Prize Packages – 4. Packages valued at $400-$600 USD. Underneath the present in black text reads: Details & Entry Inside.] Click the picture above to enter the Giveaway via Rafflecopter!!!
Improving the quality of that chronic illness life is always the goal and these products shine when it comes to bettering the day-to-day! With sponsors and prizes included in these packs donated by Chronic Illness Blogger Members, this giveaway a precedent benefit to the community I am overjoyed to share with my readers!
Entry is simple and free! Like all things in life should be!
This event is only available everyone; however, packages ten and eleven are only available to US-based participants. Winners are chosen at random via Rafflecopter.
Click through the gallery below to view available packages and feel free to share these photos across the online chronic illness community to get the word out on this colossal giveaway offering extreme value to winners!
The giveaway starts November 21st, 2016 and runs until December 3rd, 2016 so enter to WIN today!
reading a paper on quality of life among 45-to-70-year-olds with Down syndrome:
“Individuals expressed a desire to be allowed to go to bed when they wanted to.”
😦
Imagine.
I lived in a room and board that failed the burrito test. (”If you’re not allowed to get up in the middle of the night to microwave a burrito, you live in an institution.”) No one stopped me from going to bed, but they did tell me I had to have my lights out by 10, and that I had to be out of the house by 10 the next morning. When I complained to my outpatient program that I needed more help than I was getting, they threatened me with board and care, where my cell phone would be taken away and I would lose contact with the outside world. My case manager sounded so damn smug, like he had caught me out, when he said, “if you’re really as helpless as you say, then you need to be in a board and care.” Like my only options were struggling to do things I couldn’t do, or surrendering my life to an institution.
When I tried to talk about these things with other people, they always rationalized it away. (I told my dad once that my caseworker was reading my e-mails as I wrote them, demonstrating extreme disrespect for my privacy, and he said, “Well, she’s probably making sure you don’t use the internet to goof off.” I was 22 years old.)
People tend to mock the idea that telling an adult when to go to bed, when to eat, etc., is a human rights violation, even though they would find it outrageous and absurd if anyone came into their lives to do the same thing to them.
And this is what people seem to think when they tell disabled activists we’re just not disabled enough to understand that some people really do need to be locked up and deprived of all autonomy.
lets play a game of: did i really do this or did i just think about doing it
so hard that i constructed a false memory of it
this is a symptom of dissociation
Before everyone starts to freak out, this is also a symptom of human brains being fallible. False memories get constructed all the freakin’ time.
Tumblr has this really bad habit of taking things singly and saying “this is a symptom of x” and sending healthy people into a panic. You need a lot more than just one element of something for a diagnosis. You’re probably fine.
And I say this because as a mentally ill, neurodivergent person this shit sends me panicking all the time. I have to talk myself down and remember how normal a lot of it really is.
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #1
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #2
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #3
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #4
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #
Chronic Illness Bloggers Network Super Massive Holiday Giveaway Prize Pack #
Holding the Bowl 