Ehlers-Danlos Syndrome: My Journey to Genetics

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Ehlers-Danlos Syndrome: My Journey to Genetics | Stomach-vs-Heart: The Art of Survival #ChronicIllness #EhlersDanlosSyndrome

My diagnosis of Ehlers-Danlos Syndrome (EDS) took a very long or short time depending on the perspective. While all my signs and symptoms tell the tale, my ability to persevere in spite of great challenges along with the ignorance of my local medical community resulted in a 16-year battle, at times desperately seeking a reason behind all the whack-a-mole symptoms my practitioners were chalking up…

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